Marfan Syndrome: Need-to-Know Information for the School Nurse CD-Rom

A comprehensive resource for school nurses on CD-Rom format. Includes a wide variety of materials intended to provide the school nurse with practical tools to:

• identify students in the school setting who may be in need of an evaluation for Marfan syndrome.


• make a gentle yet urgent referral to appropriate healthcare workers and to the National Marfan Foundation.


• manage a student with Marfan syndrome in the school setting.


• educate the student, family and school faculty and staff about the disorder.

Includes sample individualized health plan (IHP) template, referral checklist and letter, fact sheets, emergency care plan, IEP information, and much more.

Thanks to a generous grant from the American Legion Child Welfare Foundation, school nurses are eligible to receive a single copy free of charge. School nurses can click here to fill out the request for a free copy.

• Marfan Syndrome: Need-to-Know Information for the School Nurse CD-Rom for $5.00