Features vivid illustrations of diverse children and families in real-life situations, normalizing the child’s experience with Marfan syndrome; a specialized illustration style that lets children complete coloring in the pictures, plus more coloring pages available online; hidden pictures on each page children can have fun finding; a glossary of helpful terms for parents and children. Written collaboratively by a committee consisting of parents of affected children, an affected adult, an elementary school teacher, a genetic counselor, social workers, and NMF staff members. The illustrations were created award-winning author and illustrator Lori Mitchell. 34 page soft cover book. Affected families may be eligible for a free copy, please click here
